The Emily Whitehead Foundation Launches to Support Pediatric Cancer Research

FOR IMMEDIATE RELEASE:

The Emily Whitehead Foundation Launches to Support Pediatric Cancer Research

The Emily Whitehead Foundation is a non-profit organization committed to raising funds to invest in the most promising pediatric cancer research. The foundation also hopes to provide support to pediatric cancer patients and will promote awareness of the disease through education and sharing inspiring stories.

Philipsburg, Pa (Jan. 27, 2015) – Nearly three years after being the first child in the world to receive an experimental T-cell therapy at Children’s Hospital of Philadelphia (CHOP) to save her from a life-threatening cancer, nine-year-old Emily Whitehead and her parents launch the Emily Whitehead Foundation.

The non-profit foundation aims to direct funding to medical researchers to develop better treatment options and ultimately a cure for pediatric cancer. The foundation will promote pediatric cancer awareness and hopes to provide support for families facing the disease.

Tom Whitehead, father of Emily, and President / Co-Founder of the foundation, said, “We want Emily to be able to tell her grandkids that she was the beginning of the end of cancer. Emily does not want to lose any more friends to cancer. We believe in a cure and if we work together we can put an end to this terrible disease.”

Emily was diagnosed with acute lymphoblastic leukemia (ALL) at age five in May 2010 and relapsed twice. After the second relapse, the Whiteheads were told they were out of options to treat her cancer. Not willing to give up, the Whiteheads pursued a radical new treatment called T-cell therapy at Children’s Hospital of Philadelphia (CHOP).

Emily was the first child enrolled in the phase I clinical trial (known as CART-19 or CTL019) in April 2012. Her T-cells (a type of white blood cell) were collected from her body, and then, in a process using a disabled form of the human immunodeficiency virus (HIV), the T-cells were genetically reprogrammed to recognize and attack cancer cells. When the modified T-cells were put back into Emily she became very sick and spent several weeks in the intensive care unit on a ventilator. At one point her doctor said she had only a 1 in 1000 chance of surviving the night. Not only did Emily survive that night, but a few weeks later her family was given the miracle they had prayed for: the T-cell therapy worked. Doctors couldn’t detect a single cancer cell in her body. Today, Emily is nearing three years cancer free.

Emily’s story gained worldwide attention and the trial has continued to achieve unprecedented results and provide hope to many other families facing the disease. Emily and her parents, Tom and Kari, now travel to speak at events and conferences to raise awareness and share their inspirational journey.

To learn more about the foundation, donate, and find out about upcoming events and ways to get involved, visit the website: www.emilywhiteheadfoundation.org.

#####

By |2017-07-08T15:55:47+00:00January 27th, 2015|News and Updates, Press Release|7 Comments

7 Comments

  1. Eunice Wilks January 28, 2016 at 9:07 pm - Reply

    Our daughter did this study as well. She was cancer free for 3 months. We lost her Oct. 16,2014. She was in contact with you guys. Her name is Diana Colon. How is Emily doing? Doing great I pray 🙂

  2. Karen Grasser February 5, 2015 at 12:21 pm - Reply

    i can’t wait to see where this new Foundation will lead ….to the world of children and to Emmy

  3. Brian Harris January 27, 2015 at 6:14 pm - Reply

    We support you all the way! I’d love to brainstorm big fundraising ideas that I can be part of. Our daughter Cara knew of Emily and would want us to do the fundraising in Cara’s honor. Emma gave us hope. Cara too had CAR-T Cell Therapy then a BMT but died in September.

  4. Marsha Bigler January 27, 2015 at 5:20 pm - Reply

    I’m so happy for your family. I’m Dominique Bigler’s Mom and am wanting to start a foundation in memory of our daughter. This is such a wonderful thing you are doing. Please let me know if I can help in any way.

  5. Pam Warsing January 27, 2015 at 4:42 pm - Reply

    Love the Whiteheads,we believe

  6. Charles Reighard January 27, 2015 at 3:31 pm - Reply

    what a great thing to do! Hopefully a faster cure will come for all! Since ALLIE Severino our granddaughter in Belgium is in her battle with Leukemia our prayers go out to all family’s with cancer!

    • admin February 25, 2015 at 5:02 pm - Reply

      We are sending prayers to Allie!

Leave a Reply